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Spasmodic dysphonia groups criticise actor for crediting disability as inspiration for her doppelganger’s voice in Jordan Peele film...
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On one hand, as an actor, I fully understand and appreciate how you might draw inspiration for a character from an unexpected and unusual source, but ultimately, have to side with the National Spasmodic Dysphonia Association (NSDA) in its criticism of Lupita Nyong’o for her recent revelation that she based the strained voice of her murderous character, "Red," in the film "Us," on Robert F Kennedy Jr, who has the disorder that causes involuntary spasms of the larynx. In raising their objection, the NSDA explained, "We understand that hearing the unique sound caused by symptoms of spasmodic dysphonia was the spark of inspiration for the voice of this character. What is difficult for us, and for the thousands of people living with spasmodic dysphonia, is this association to their voice with what might be considered haunting...Spasmodic dysphonia is not a creepy voice; it’s not a scary voice. It’s a disability that people are living with and [they] shouldn’t be judged on.”